{"id":9129,"date":"2019-06-28T20:18:19","date_gmt":"2019-06-28T19:18:19","guid":{"rendered":"http:\/\/dev5.sclerodermie.ca\/?page_id=9129"},"modified":"2019-08-01T17:15:21","modified_gmt":"2019-08-01T16:15:21","slug":"the-scleroderma-patient-centered-intervention-network-spin","status":"publish","type":"page","link":"http:\/\/dev5.sclerodermie.ca\/en\/the-scleroderma-patient-centered-intervention-network-spin\/","title":{"rendered":"The Scleroderma Patient-centered Intervention Network (SPIN)"},"content":{"rendered":"<p style=\"text-align: center;\">\u00a0<\/p>\n<p><span style=\"font-size: 18pt;\"><a href=\"http:\/\/dev5.sclerodermie.ca\/the-scleroderma-patient-centered-intervention-network-spin\/spin-small-logo\/\" rel=\"attachment wp-att-9266\"><img decoding=\"async\" loading=\"lazy\" class=\"wp-image-9266 alignleft\" src=\"http:\/\/dev5.sclerodermie.ca\/wp-content\/uploads\/2019\/03\/Spin-small-logo-300x300.jpg\" alt=\"\" width=\"219\" height=\"219\" srcset=\"http:\/\/dev5.sclerodermie.ca\/wp-content\/uploads\/2019\/03\/Spin-small-logo-300x300.jpg 300w, http:\/\/dev5.sclerodermie.ca\/wp-content\/uploads\/2019\/03\/Spin-small-logo-150x150.jpg 150w, http:\/\/dev5.sclerodermie.ca\/wp-content\/uploads\/2019\/03\/Spin-small-logo.jpg 750w\" sizes=\"(max-width: 219px) 100vw, 219px\" \/><\/a><\/span><\/p>\n<p>The Scleroderma Patient-centered Intervention Network (SPIN) is an organization of researchers, health care providers, and people living with scleroderma from around the world.<\/p>\n<p>&nbsp;<\/p>\n<p>SPIN\u2019s mission is to work with people with scleroderma to identify their needs and prioritize research in areas most important to them, and to develop, test and disseminate accessible patient programs that improve quality of life and empower people with scleroderma and their loved ones.<\/p>\n<p>&nbsp;<\/p>\n<p>Areas targeted by SPIN\u2019s programs include managing symptoms, daily tasks, emotions and changing relationships related to illness, as well as balancing activity and rest.<\/p>\n<p>&nbsp;<\/p>\n<h3>Collaborators network<\/h3>\n<p>SPIN is led by Dr. Brett Thombs from the Jewish General Hospital and McGill University in Montreal, Canada. The network is working closely with scleroderma experts at over 45 clinical sites around the world and scleroderma patient organizations, including Scleroderma Canada, Scl\u00e9rodermie Qu\u00e9bec, the Scleroderma Association of British Columbia, Scleroderma Alberta, the Scleroderma Association of Saskatchewan, Scleroderma Manitoba, the Scleroderma Society of Ontario, the Scleroderma Society of Nova Scotia, the US Scleroderma Foundation, the Federation of European Scleroderma Associations (FESCA), the Dutch patient organization for systemic autoimmune diseases (NVLE), Scleroderma Australia, Scleroderma New Zealand, Scleroderma &amp; Raynaud\u2019s UK (SRUK), Project Scleroderma, the Spanish Scleroderma Association, and the French Scleroderma Association (ASF).<\/p>\n<p>To stay up to date on SPIN\u2019s research activities, you can follow us on Facebook <strong>(<\/strong><a href=\"http:\/\/www.facebook.com\/spinsclero)\"><strong>www.facebook.com\/spinsclero)<\/strong><\/a><strong>, <\/strong>Twitter<strong> (<\/strong><a href=\"http:\/\/www.twitter.com\/spinsclero)\"><strong>www.twitter.com\/spinsclero)<\/strong><\/a><strong>, <\/strong>or our website <span style=\"color: #0000ff;\"><strong>(<\/strong><\/span><a href=\"http:\/\/www.spinsclero.com)\"><strong>www.spinsclero.com)<\/strong><\/a><strong>.<\/strong><\/p>\n","protected":false},"excerpt":{"rendered":"<p>\u00a0 The Scleroderma Patient-centered Intervention Network (SPIN) is an organization of researchers, health care providers, and people living with scleroderma from around the world. &nbsp; SPIN\u2019s mission is to work with people with scleroderma to identify their needs and prioritize research in areas most important to them, and to develop, test and disseminate accessible patient [&hellip;]<\/p>\n","protected":false},"author":7,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"page-groupe-de-recherche.php","meta":[],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v19.14 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>The Scleroderma Patient-centered Intervention Network (SPIN) - Sclerodermie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/dev5.sclerodermie.ca\/en\/the-scleroderma-patient-centered-intervention-network-spin\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"The Scleroderma Patient-centered Intervention Network (SPIN) - Sclerodermie\" \/>\n<meta property=\"og:description\" content=\"\u00a0 The Scleroderma Patient-centered Intervention Network (SPIN) is an organization of researchers, health care providers, and people living with scleroderma from around the world. &nbsp; 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