{"id":353,"date":"2019-11-30T14:09:51","date_gmt":"2019-11-30T13:09:51","guid":{"rendered":"http:\/\/dev5.sclerodermie.ca\/?page_id=353"},"modified":"2020-07-07T21:37:44","modified_gmt":"2020-07-07T20:37:44","slug":"your-medical-care","status":"publish","type":"page","link":"http:\/\/dev5.sclerodermie.ca\/en\/information-2\/your-medical-care\/","title":{"rendered":"Your Medical Care Management"},"content":{"rendered":"<p>When it comes to navigating the healthcare system and working with various medical professionals, keeping one\u2019s medical information well-organized and easily accessible may be time-consuming.<\/p>\n<p>To help you organize, track and catalogue your medical information successfully, we invite you to download the &#8220;<a href=\"http:\/\/dev5.sclerodermie.ca\/wp-content\/uploads\/2019\/08\/SQ_ClasseurMedicaux2019_Anglais.pdf\" target=\"_blank\" rel=\"noopener noreferrer\">Healthcare Management Binder<\/a> <img decoding=\"async\" src=\"http:\/\/dev5.sclerodermie.ca\/wp-content\/uploads\/2014\/06\/web-icon-pdf-e1403881726606.png\" alt=\"web-icon-pdf\" \/>&#8220;.\u00a0<\/p>\n<p>Please note that the material in the \u201cHealthcare Management Binder\u201d is presented for general information only. It is not intended to substitute for informed medical advice. The binder is a resource that should be used in conjunction with one\u2019s healthcare provider(s).<\/p>\n<p>We sincerely hope that this binder serves as an easy and efficient tool in managing your overall healthcare experience.\u00a0<\/p>\n<p>To learn more about the most common complications of scleroderma, we encourage you to familiarize yourself with the warning signs that you and your loved ones should regularly be watching for. Please refer to the brochure \u00a0<a href=\"http:\/\/dev5.sclerodermie.ca\/wp-content\/uploads\/2014\/10\/Brochure-anglaise-Actelion.pdf\" target=\"_blank\" rel=\"noopener noreferrer\">What is scleroderma?<\/a>\u00a0<img decoding=\"async\" src=\"http:\/\/dev5.sclerodermie.ca\/wp-content\/uploads\/2014\/06\/web-icon-pdf-e1403881726606.png\" alt=\"web-icon-pdf\" \/><\/p>\n<h2><strong>How to prepare for<\/strong><strong> your medical appointment<\/strong>\u00a0<\/h2>\n<p>To clearly articulate your condition to your doctor and avoid forgetting something important during your medical visit, here are some tips that will help you get answers to your questions.\u00a0<\/p>\n<p><strong>Before your visit<\/strong><\/p>\n<p>Write down all relevant information about your health and questions you want to ask.<\/p>\n<ol>\n<li><strong>Make<\/strong><strong> a list, including observations<\/strong> that you have made \u200b\u200bsince your health problem started and describe them accurately:<\/li>\n<\/ol>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul>\n<li>Symptoms or discomforts experienced; (fatigue, pain, loss of appetite, insomnia, or any other change in my body&#8230;)<\/li>\n<li>At what times do they appear? (morning, afternoon, evening, night, before\/after meals, after exercise or effort, rest&#8230;)<\/li>\n<li>For how long did you have these symptoms? (number of minutes, hours, days or months&#8230;)<\/li>\n<li>How often do these symptoms occur? (at the same time of day, every day, every week, every month, all the time, irregularly&#8230;)<\/li>\n<li>What is their intensity? (light, moderate, unbearable&#8230;)<\/li>\n<li>What means and\/or drugs did I use to help reduce the discomfort and what results did I achieve?<\/li>\n<li>Is there anything that makes the symptom better? (For example resting or standing up after a meal)<\/li>\n<li>Is there anything that makes the symptom worse? (For example bending over or lying down in bed after a meal)<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<ol start=\"2\">\n<li><strong>Prepare your questions<\/strong><\/li>\n<\/ol>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul>\n<li>Do I\u00a0understand the disease and its potential complications?<\/li>\n<li>Do I understand the reasons for prescribed tests: What helpful information will they tell the doctor? What are the risks of the tests? How will the results change the future treatment plan?<\/li>\n<li>Do I know if different treatments are available? What are the advantages and disadvantages of each treatment? What can I expect from the treatment?<\/li>\n<li>Do I know everything I need about my medication:\n<ul>\n<li>the name of my medication;<\/li>\n<li>the symptom this medication should be helping with and how long it takes for the medication to start working;<\/li>\n<li>how and when to take the medication and what to do if I miss a dose;<\/li>\n<li>where and how to store the medication;<\/li>\n<li>the duration of treatment;<\/li>\n<li>the potential side effects and\u00a0what to do if they occur;<\/li>\n<li>its possible interactions with other drugs, foods, alcohol, natural products, etc.;<\/li>\n<li>the risk of becoming addicted or dependent on the medication.<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<p>It is important to make a long enough appointment that provides the opportunity for a thorough and in-depth discussion with your doctor. Remember to bring all your medications, including over-the-counter medications and any supplements you are taking.<\/p>\n<h2><strong>Making Healthcare Decisions<\/strong><\/h2>\n<p>With all this information and medical terms, how does one decide on the best course of treatment for them. SPIN has created a <a href=\"http:\/\/dev5.sclerodermie.ca\/wp-content\/uploads\/2019\/12\/SPIN-Making-Healthcare-Decisions-Worksheet.pdf\" target=\"_blank\" rel=\"noopener noreferrer\">worksheet<\/a> for you to compare options applying a perspective of risks and rewards for you. Maybe this can help you clarify what is possible and make your decision.<\/p>\n<p>Adapted from the information sheet: <em>Questions \u00e0 poser \u00e0 mon m\u00e9decin ou pharmacien lors de mon entrevue. Les M\u00e9dicaments\u00a0: Oui\u2026 Non\u2026 Mais! <\/em><em>En Mont\u00e9r\u00e9gie<\/em> (Questions to ask my doctor or pharmacist during my interview. Drugs: Yes &#8230; No &#8230; But! In Mont\u00e9r\u00e9gie, based on a paper by the Outaouais DSP (1989) and the book: <em>Le p\u2019tit guide des m\u00e9dicaments \u00e0 l\u2019usage des personnes de 50 ans et plus<\/em> (A Short Guide to Medication for the 50 year-olds and over. G. Barbeau, C. Brunelle, Mr. Dugas, A. Roberge 1999).<\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>When it comes to navigating the healthcare system and working with various medical professionals, keeping one\u2019s medical information well-organized and easily accessible may be time-consuming. To help you organize, track and catalogue your medical information successfully, we invite you to download the &#8220;Healthcare Management Binder &#8220;.\u00a0 Please note that the material in the \u201cHealthcare Management [&hellip;]<\/p>\n","protected":false},"author":6,"featured_media":0,"parent":109,"menu_order":0,"comment_status":"open","ping_status":"open","template":"page-information.php","meta":[],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v19.14 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Your Medical Care Management - Sclerodermie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/dev5.sclerodermie.ca\/en\/information-2\/your-medical-care\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Your Medical Care Management - Sclerodermie\" \/>\n<meta property=\"og:description\" content=\"When it comes to navigating the healthcare system and working with various medical professionals, keeping one\u2019s medical information well-organized and easily accessible may be time-consuming. 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